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Obciążenie opiekuna rodzinnego osoby chorej na demencję – uwarunkowania, konsekwencje i formy wsparcia

dc.contributor.authorPatyk - Rybka, Aleksandra
dc.contributor.editorFelczak, Joanna (red.)
dc.date.accessioned2026-08-20T07:16:02Z
dc.date.issued2025
dc.description.abstractOpieka nad osobą chorą na demencję wiąże się z długotrwałym obciążeniem opiekunów rodzinnych/nieformalnych. W niniejszym artykule omówiono rodzaje obciążenia, jego genezę oraz czynniki warunkujące jego nasilenie. Przedstawiono konsekwencje przeciążenia opieką dla zdrowia psychicznego i somatycznego opiekunów, jak i również omówiono formy wsparcia opiekunów rodzinnych.pl
dc.description.abstractCaring for a person with dementia involves long-term burdens for family or informal caregivers. This article discusses the types of burden, its origins, and the factors influencing its intensity. The consequences of caregiver overload on both mental and physical health are presented, as well as the forms of support available for family caregivers.en_US
dc.identifier.citationPatyk - Rybka, A. (2025). Obciążenie opiekuna rodzinnego osoby chorej na demencję – uwarunkowania, konsekwencje i formy wsparcia. W: J. Felczak (red.), Przekraczanie granic między sferami egzystencji, t. 1 (s. 1-16). Wydawnictwo WSB-NLU.
dc.identifier.doi10.66935/978-83-65926-16-6.04
dc.identifier.isbn978-83-65926-16-6
dc.identifier.urihttps://repozytorium.wsb-nlu.edu.pl/handle/11199/11395
dc.language.isopl
dc.publisherWydawnictwo WSB-NLU
dc.relation.ispartofPrzekraczanie granic między sferami egzystencji
dc.relation.referencesBrodaty, H., Thomson, C., Thompson, C., Fine, M. (2005). Why caregivers of people with dementia and memory loss don’t use services. International Journal of Geriatric Psychiatry, 20(6), 537-546. http://dx.doi.org/10.1002/gps.1322
dc.relation.referencesDevor, M., Renvall, M. (2008). An educational intervention to support caregivers of elders with dementia. American Journal of Alzheimer’s Disease & Other Dementias, 23(3), 233-241. https://doi.org/10.1177/1533317508315336
dc.relation.referencesDługosz-Mazur, E., Bojar, I., Gustaw, K. (2014). Niefarmakologiczne metody postępowania u chorych z otępieniem. Medycyna Ogólna i Nauki o Zdrowiu, 19(4), 458-462.
dc.relation.referencesDreier-Wolfgramm, A., Michalowsky, B., Austrom, M. G., van der Marck, M. A., Iliffe, S., Alder, C., Vollmar, H. C., Thyrian, J. R., Wucherer, D., Zwingmann, I., Hoffmann, W. (2017). Dementia care management in primary care: Current collaborative care models and the case for interprofessional education. Zeitschrift für Gerontologie und Geriatrie, 50(Suppl 2), 68-77. https://doi.org/10.1007/s00391-017-1220-8
dc.relation.referencesDurda, M. (2010). Organizacja opieki nad osobami z demencją w Polsce na tle krajów rozwiniętych i rozwijających się. Gerontologia Polska, 18(2), 76-85.
dc.relation.referencesEl-Hayek, Y. H., Wiley, R. E., Khoury, C. P., Daya, R. P., Ballard, C., Evans, A. R., Karran, M., Molinuevo, J. L., Norton, M., Atri, A. (2019). Tip of the iceberg: Assessing the global socioeconomic costs of Alzheimer’s disease and related dementias and strategic implications for stakeholders. Journal of Alzheimer’s Disease, 70(2), 323–341. https://doi.org/10.3233/JAD-190426
dc.relation.referencesFerrara, M., Langiano, E., Di Brango, T., De Vito, E., Di Cioccio, L., Bauco, C. (2008). Prevalence of stress, anxiety and depression in caregivers of patients with Alzheimer’s caregivers. Health and Quality of Life Outcomes, 6(93). https://doi.org/10.1186/1477-7525-6-93
dc.relation.referencesGarity, J. (2006). Caring for a family member with Alzheimer's disease: Coping with caregiver burden post-nursing home placement. Journal of Gerontological Nursing, 32(6), 39–48. https://doi.org/10.3928/00989134-20060601-07
dc.relation.referencesGitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., Hauck, W. W. (2010). A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: The COPE randomized trial. JAMA, 304(9), 983-991. https://doi.org/10.1001/jama.2010.1253
dc.relation.referencesGrabher, B. J. (2018). Effects of Alzheimer disease on patients and their family. Journal of Nuclear Medicine Technology, 46(4), 335-340. https://doi.org/10.2967/jnmt.118.218057
dc.relation.referencesGrabowska-Fudala, B., Jaracz, K. (2006). Obciążenie osób sprawujących opiekę nad chorymi po przebytym udarze mózgu. Udar Mózgu. Problemy Interdyscyplinarne, 8(1), 42-47. https://journals.viamedica.pl/um/article/view/33737/24779
dc.relation.referencesGustavsson, A., Brinck, P., Bergvall, N., Kolasa, K., Wimo, A., Winblad, B., Jönsson, L. (2011). Predictors of costs of care in Alzheimer's disease: A multinational sample of 1222 patients. Alzheimer’s & Dementia, 7(3), 318-327. https://doi.org/10.1016/j.jalz.2010.09.001
dc.relation.referencesGustaw, K., Bełtowska, K., Makara-Studzińska, M. (2008). Reakcje emocjonalne opiekunów osób z demencją — potrzeba pomocy społecznej. Przegląd Lekarski, 65(6), 304–307.
dc.relation.referencesHan, S., Chi, N. C., Han, C., Oliver, D. P., Washington, K., Demiris, G. (2019). Adapting the resilience framework for family caregivers of hospice patients with dementia. American Journal of Alzheimer’s Disease & Other Dementias, 34(6), 399-411. https://doi.org/10.1177/1533317519862095
dc.relation.referencesHandels, R. L. H., Sköldunger, A., Bieber, A., Edwards, R. T., Gonçalves-Pereira, M., Hopper, L., Irving, K., Jelley, H., Kerpershoek, L., Marques, M. J., Mayer, G., Michelet, M., Portolani, E. Rosvik, J., Selbaek, G., Stephan, A., de Vugt, M., Wolfs, C., Woods, B., […] Wimo, A. (2018). Quality of life, care resource use, and costs of dementia in 8 European countries in a cross-sectional cohort of the Actifcare study. Journal of Alzheimer’s Disease, 66(3), 1027-1040. https://doi.org/10.3233/JAD-1802
dc.relation.referencesKłoszewska, I. (2007). Rola opiekuna chorych z otępieniem. Polski Przegląd Neurologiczny, 3(2), 105-109.
dc.relation.referencesLiu, S., Li, C., Shi, Z., Wang, X., Zhou, Y., Liu, S. (2017). Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer’s disease caregivers in China. Journal of Clinical Nursing, 26(9–10), 1291-1300. https://doi.org/10.1111/jocn.13601
dc.relation.referencesMahoney, R., Regan, C., Katona, C., Livingston, G. (2005). Anxiety and depression in family caregivers of people with Alzheimer disease: The LASER-AD study. American Journal of Geriatric Psychiatry, 13(9), 795-801. https://doi.org/10.1176/appi.ajgp.13.9.795
dc.relation.referencesMandecka, M., Florczak, M. (2010). Choroba Alzheimera w systemie rodzinnym z perspektywy psychologicznej. Postępy Nauk Medycznych, 23(6), 449-457.
dc.relation.referencesMisiak, K., Kopydłowska, E. (2011). Przygotowanie rodziny do opieki nad osobą starszą, cierpiącą na chorobę otępienną. Pielęgniarstwo i Zdrowie Publiczne, 1(1), 65-75.
dc.relation.referencesMittelman, M. S., Haley, W. E., Clay, O. J., Roth, D. L. (2006). Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology, 67(9), 1592–1599. https://doi.org/10.1212/01.wnl.0000242727.81172.91
dc.relation.referencesMortazavizadeh, Z., Maercker, A., Roth, T., Savaskan, E., Forstmeier, S. (2020). Quality of the caregiving relationship and quality of life in mild Alzheimer’s dementia. Psychogeriatrics, 20(5), 568-577. https://doi.org/10.1111/psyg.12546
dc.relation.referencesNeville, C., Beattie, E., Fielding, E., MacAndrew, M. (2015). Literature review: Use of respite by carers of people with dementia. Health & Social Care in the Community, 23(1), 51-53. https://doi.org/10.1111/hsc.12095
dc.relation.referencesOliveira, D., Sousa, L., Orrell, M. (2019). Improving health-promoting self-care in family carers of people with dementia: A review of interventions. Clinical Interventions in Aging, 14, 515–523. https://doi.org/10.2147/CIA.S190610
dc.relation.referencesPasek, M., Kołpa, M., Knapik, G. (2014). Edukacja zdrowotna chorego z zespołem otępiennym – studium przypadku. Pielęgniarstwo i Zdrowie Publiczne, 4(2), 117-125.
dc.relation.referencesPfeiffer, E. (1995). Institutional placement for patients with Alzheimer’s disease: How to help families with a difficult decision. Postgraduate Medicine, 97(1), 125-132. https://doi.org/10.1080/00325481.1995.11945951
dc.relation.referencesRachel, W., Datka, W., Zyss, T., Zięba, A. (2014). Obciążenie opiekunów pacjentów z otępieniem w chorobie Alzheimera. Gerontologia Polska, 22(1), 14-23.
dc.relation.referencesRachel, W., Turkot, A. (2015). Jak pomóc opiekunom pacjentów z otępieniem w chorobie Alzheimera? Psychoterapia, 1(172), 59-71.
dc.relation.referencesRansmayr, G., Hermann, P., Sallinger, K., Benke, T., Seiler, S., Dal-Bianco, P., Marksteiner, J., Defrancesco, M., Sanin, G., Struhal, W., Guger, M., Vosko, M., Hagenauer, K., Lehner, R., Futschik, A., Szmidt, R. (2018). Caregiving and caregiver burden in dementia home care: Results from the prospective dementia registry (PRODEM) of the Austrian Alzheimer Society. Journal of Alzheimer’s Disease, 63(1), 103-114. https://doi.org/10.3233/JAD-170657
dc.relation.referencesReed, C., Belger, M., Scott Andrews, J., Tockhorn-Heidenreich, A., Jones, R. W., Wimo, A., Dodel, R., Haro, J. M. (2020). Factors associated with long-term impact on informal caregivers during Alzheimer’s disease dementia progression: 36-month results from GERAS. International Psychogeriatrics, 32(2), 267–277. https://doi.org/10.1017/S1041610219000425
dc.relation.referencesRichards, K. M., Shepherd, M. D., Crismon, M. L., Snyder, E. H., Jermain, D. M. (2000). Medical services utilization and charge comparisons between elderly patients with and without Alzheimer's disease in a managed care organization. Clinical Therapeutics, 22(6), 775-791. https://doi.org/10.1016/s0149-2918(00)90011-0
dc.relation.referencesRobinson, A., Lea, E., Hemmings, L., Vosper, G., McCann, D., Weeding, F., Rumble, R. (2012). Seeking respite: Issues around the use of day respite care for the carers of people with dementia. Ageing and Society, 32(2), 196-218. https://doi.org/10.1017/S0144686X11000195
dc.relation.referencesRuiz-Adame Reina, M., González-Camacho, M. C., Romero-García, J. E., Sánchez-Reyes Fernández, L. M. (2017). Profiles of Alzheimer’s caregivers in Spain: Social, educational and laboral characteristics. Scandinavian Journal of Caring Sciences, 31(4), 867–877. https://doi.org/10.1111/scs.12408
dc.relation.referencesSchoenmakers, B., Buntinx, F., Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia: A systematic literature review. Maturitas, 66(2), 191-200. https://doi.org/10.1016/j.maturitas.2010.02.009
dc.relation.referencesSerrano Aguilar, P. G., Lopez Bastida, J., Yanes Lopez, V. (2006). Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer’s disease. Neuroepidemiology, 27(3), 136-142. https://doi.org/10.1159/000095760
dc.relation.referencesTakeda, C., Guyonnet, S., Sumi, Y., Vellas, B., Araujo de Carvalho, I. (2020). Integrated care for older people and the implementation in the INSPIRE care cohort. Journal of Prevention of Alzheimer’s Disease, 7(2), 70-74. https://doi.org/10.14283/jpad.2020.8
dc.relation.referencesThompson, A. E., Miron, A. M., Rogers, J. M., Rice, R. (2020). The development and psychometric validation of a comprehensive measure assessing fear of incompetence among adults who have a family member with dementia. International Journal of Alzheimer’s Disease, 1-15. 1910252. https://doi.org/10.1155/2020/1910252
dc.relation.referencesTrinh, E., Lee, A., Kim, K. Y. (2020). End-of-life care of persons with Alzheimer disease: An for clinicians. American Journal of Hospice and Palliative Medicine, 37(4), 314-317. https://doi.org/10.1177/1049909119885881
dc.relation.referencesVandepitte, S., Van Den Noortgate, N., Putman, K., Verhaeghe, S., Faes, K., Annemans, L. (2016). Effectiveness of respite care in supporting informal caregivers of persons with dementia: A systematic review. International Journal of Geriatric Psychiatry, 31(12), 1277-1288. https://doi.org/10.1002/gps.4504
dc.relation.referencesVandepitte, S., Putman, K., Van Den Noortgate, N., Verhaeghe, S., Annemans, L. (2019). Effectiveness of an in-home respite care program to support informal dementia caregivers: A comparative study. International Journal of Geriatric Psychiatry, 34(10), 1534–1544. https://doi.org/10.1002/gps.5164
dc.relation.referencesWattmo, C., Wallin, A. K., Londos, E., Minthon, L. (2011). Risk factors for nursing home placement in Alzheimer's disease: A longitudinal study of cognition, ADL, service utilization, and cholinesterase inhibitor treatment. The Gerontologist, 51(1), 17–27. https://doi.org/10.1093/geront/gnq050
dc.relation.referencesWhitlatch, C. J., Orsulic-Jeras, S. (2018). Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers. Gerontologist, 58(Suppl. 1), S58–S73. https://doi.org/10.1093/geront/gnx162
dc.relation.referencesWorld Health Organization. (2017). Global status report on the public health response to dementia 2017. World Health Organization.
dc.relation.referencesZasada, J. (2019). Formy instytucjonalnej opieki nad osobami dotkniętymi chorobą Alzheimera. Studia Prawno-Ekonomiczne, 111, 171-183. https://doi.org/10.26485/SPE/2019/111/9
dc.relation.referencesUstawa z dnia 7 lipca 2023 r. o świadczeniu wspierającym. (2023). Dz.U. 2023 poz. 1429.
dc.rightshttp://purl.org/coar/access_right/c_abf2
dc.subjectobciążenie opiekąpl
dc.subjectdemencjapl
dc.subjectopiekun rodzinnypl
dc.subjectwsparciepl
dc.subjectcaregiver burdenen_US
dc.subjectdementiaen_US
dc.subjectfamily caregiveren_US
dc.subjectsupporten_US
dc.titleObciążenie opiekuna rodzinnego osoby chorej na demencję – uwarunkowania, konsekwencje i formy wsparcia
dc.title.alternativeThe burden of family caregivers of people with dementia – determinants, consequences, and forms of supporten_US
dc.typeBook chapter

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